Terri Ellsworth is convinced that her 12-year-old son Billy, who has Duchenne muscular dystrophy, is being helped by an experimental drug that counteracts the genetic mutation causing his disease.
His ability to walk has not deteriorated in the two years he has been on the drug, whereas many boys with the disease would be in wheelchairs by his age. Billy opened a Gatorade bottle by himself recently, beaming from ear to ear. He even took off down an uneven dirt path without falling.
“He never would have done that, ever,” said Ms. Ellsworth, 55, a kitchen and bath designer from Coraopolis, Pa., outside Pittsburgh. “Without this drug, he would not be walking today.”
Read it all (and there is a slideshow for those interested in pictures).
Ironic that this heart wrenching story is in the NYT. If the ACA is fully funded, you will be seeing no more stories like these. The drug company hating left is insuring that there will be no more experimental drugs. Thus no more stories like this. And the HHS death panels that don’t exist, according to the Times/Post/et. al., will just let this child die.