(NYT) Fighting the Health Care System for a Simple Request: To Die at Home

Craning his neck, he sought the eyes of his daughter, Maureen Stefanides, who had promised to get him out of this place. “I want to go home, to my books and my music,” he said, his voice whispery but intense.

He was still her handsome father, the song-and-dance man of her childhood, with a full head of wavy hair and blue eyes that lit up when he talked. But he was gaunt now, warped like a weathered plank, perhaps by late effects of an old stroke, certainly by muscle atrophy and bad circulation in his legs.

Now she was determined to fulfill her father’s dearest wish, the wish so common among frail, elderly people: to die at home.

But it seemed as if all the forces of the health care system were against her ”” hospitals, nursing homes, home health agencies, insurance companies, and the shifting crosscurrents of public health care spending.

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