(Globe and Mail) Abby Lippman–Why genetic self-test kits should not be allowed into Canada

Even if one ignores some very important issues ”“ such as just what DNA patterns can predict about the likelihood of developing any of the diseases for which risk factor screening is done (basically, little if anything); how using the 23andMe tests to determine health risks is currently prohibited by the FDA in the U.S.; and the potential for obtaining disrupting, disturbing, or even destructive information about family connections (which is a far from trivial possibility) ”“ serious additional concerns arise in this country. These stem from the ongoing absence of genetic privacy and genetic discrimination laws in Canada, a contrast with the U.S. where there are (some) longstanding protections against misuses of DNA data.

This suggests that when someone in Canada gets a report of its findings from 23andMe, there is no way to keep insurance companies or employers from asking about it. Maybe not directly, but during an interview, applicants might be asked if they have ever had any genetic testing and, if so, what was found. Not to reveal that testing was done could be seen as providing a false answer and thereby disqualify the individual from coverage or a job. Maybe this is not as bad as learning a father is not really the man you thought he was, or as pleasing as finding you have a sister who was adopted into another family living nearby, but definitely a more negative outcome than is desirable.

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