Michael Wenham –Why I, as an MND sufferer, oppose a change in the law on assisted suicide

It’s so obviously reasonable ”“ and kind. You wouldn’t let your dog suffer if there was no hope, would you? “It’s quite wrong that only people who can afford it and have the emotional wherewithal and the support to do it have this choice (to go to Switzerland and end their own lives),” as Lord Falconer said on ITV News.

I was diagnosed with a ”˜motor neurone disorder’ 13 years ago. It turned out to be Primary Lateral Sclerosis, the slowest and rarest form of MND. Over time my life has become progressively more restricted. No more walking in Snowdonia and the Lake District; no more camping with the family in France; no more squash, or cycling, or gardening. I stopped working. We had to move to a smaller house with a lift and a small garden. My wife who had now become my sole carer didn’t have time to spend mowing lawns and growing beans. She is occupied getting me dressed and undressed, meeting my needs from toilet to teatime, from breakfast to bedtime.

We might well be expected to support the Marris Bill to legalise assisted dying. After all, what quality of life do we have ahead of us? Wouldn’t it be something to hold on to ”“ the possibility that when we’d both had enough we could call time? But it’s not all about me. Society is a network of relationships, of interdependence. Our actions are never without effects. That is why life is in fact so rich. My life, when I open my eyes to look, has not been impoverished by my disabling disease; it is deeper and fuller in a way I could not have foreseen. I’m not saying it’s easier. It’s frustrating and painful; it can be depressing. But life is still good.

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