[James] Eversull’s parents were determined to help him. The family drove almost 400 miles from their home in Louisiana to St. Jude Children’s Research Hospital in Memphis, Tenn.

St. Jude was named after the patron saint of lost causes for a reason.

“These children were often turned away,” said Dr. Donald Pinkel about his years as a young doctor in the 1950s. He went on to become the first medical director at St. Jude. “A lot of physicians just didn’t want to handle this situation ”” it was so sad.”

Read or listen to it all.

Kara Tippetts, 38, has died. Metastatic breast cancer took her from her pastor husband, Jason, and their four children on Sunday (March 22).

But in her last years of life, her saga of accepting suffering became, in a quietly powerful way, a cultural force for another way of choosing death with dignity, one that refused to hasten death.

Read it all.

I am not neutral. I agree with Dolce and Gabbana. Elton John is wrong. This is not to insult his children or take away from their humanity; nor is it to demean the character of men who love men everywhere. I am just as queer as both of these men. I have been out as bisexual since 1989 and have withstood a great deal of hostility from both the LGBT community and conservative Christians for refusing to use the label “ex-gay” to describe myself.

I also grew up with a lesbian couple without much connection to my father. In the process of writing my most recent book, Jephthah’s Daughters, I dealt with countless testimonials from children of same-sex couples all over the world. Stefano Gabbana gets us. Part of this is because his craft leads him outside of language to the ineffable world of instinct.

You can tell a child in such a home every day, “we are your fathers,” but our bodies and the rest of the visual environment around us will always reveal such words as false. The day-to-day rhythm of life, that quotidian routine that Gabbana must understand for his art but which Elton John does not have to, acts upon the language of same-sex parenting like a trickle of water wearing down a rock. With each day, in all the small gestures and emotional moments, the child puts together a picture of herself in the world and eventually realizes that the same-sex parents have created a world that is . . . what can we call it? Let’s use the language of theater critics: Contrived. Forced. Implausible.

Synthetic.

Read it all from First Things.

It is an off-season like no other in the National Football League. Young players, with many games and millions of dollars potentially ahead of them, are walking away from the country’s most popular sport.

Linebacker Chris Borland of the San Francisco 49ers, one of the top rookies in the N.F.L. last season, is the latest case, and perhaps the most noteworthy. He said Monday that he was retiring because of concerns about his safety, and his decision may have ripple effects well beyond the professional ranks.

“Somebody said we’re at the beginning of the beginning, and that might be true,” Jeff Borland, Chris’s father, said Tuesday in a telephone interview regarding whether his son’s decision would influence parents of young football players.

Read it all.

On the one hand, scientists are excited about these techniques because they may let them do good things, such as discovering important principles about biology. It might even lead to cures for diseases.

The big worry is that CRISPR and other techniques will be used to perform germline genetic modification.

Basically, that means making genetic changes in a human egg, sperm or embryo.

Read it all.

I think luo has something important to teach us in the face of dementia. In the face of deficit, decline, and death we try hard to cling on. But the lesson of the little word luo is that maybe the path of resurrection lies in letting go. If death is starting now, maybe resurrection can start now too.

Perhaps it’s only when we let go of who and what our loved one was that we can receive who they are now. Perhaps only when we find ways to enjoy who they are now can we reverse the deficit and the decline, because we stop assuming they’re moving away from something good and start appreciating that they’re moving into something new.

Dementia is not a living death. It’s an invitation to see how we can remain the same person yet take on new and rather different characteristics. In that sense it’s a training in resurrection, in which we shall be changed but still recognizably ourselves. Like resurrection, we can’t experience it unless we find ways to let go, to let loose, to be released and forgiven. God welcomes us into eternal life not by keeping a tight hold on us but by letting us go. The challenge for us in dementia is to find ways that we can do the same.

Read it all.

As the nation awaits legalized doctor-assisted death, the transplant community is grappling with a potential new source of life-saving organs ”” offered by patients who have chosen to die.

Some surgeons say every effort should be made to respect the dying wishes of people seeking assisted death, once the Supreme Court of Canada ruling comes into effect next year, including the desire to donate their organs.

But the prospect of combining two separate requests ”” doctor-assisted suicide and organ donation ”” is creating profound unease for others. Some worry those contemplating assisted suicide might feel a societal pressure to carry through with the act so that others might live, or that it could undermine struggling efforts to increase Canada’s mediocre donor rate.

Read it all.

Loneliness kills. That’s the conclusion of a new study by Brigham Young University researchers who say they are sounding the alarm on what could be the next big public-health issue, on par with obesity and substance abuse.

The subjective feeling of loneliness increases risk of death by 26%, according to the new study in the journal Perspectives on Psychological Science. Social isolation ”” or lacking social connection ”” and living alone were found to be even more devastating to a person’s health than feeling lonely, respectively increasing mortality risk by 29% and 32%.

“This is something that we need to take seriously for our health,” says Brigham Young University researcher Julianne Holt-Lunstad, an author of the study. “This should become a public-health issue.”

Read it all.

More than two decades before Brittany Maynard’s public advocacy for death with dignity inspired lawmakers in Washington, D.C., and at least 16 states to introduce legislation authorizing the medical practice of aid in dying for the terminally ill, Senator Frank Roberts of Oregon sponsored one of the nation’s first death-with-dignity bills.

Had he lived longer, Frank might have been able to benefit from Oregon’s becoming a state that allowed death with dignity. But he died too soon. I had spent 25 years as an emergency room and intensive care nurse and a physician assistant in cardiology. I witnessed many people’s deaths. But Frank’s was the one that truly ignited my conviction to help change the way Americans die. Frank served in the Oregon House of Representatives from 1966 to 1970 and the Oregon State Senate from 1974 until terminal cancer forced his retirement in September 1993. I was privileged to meet him when I staffed the Health Care and Bioethics Committee on which he served. He was one of the few politicians I ever called a “statesman.”

Read it all.

Odds are you’ve interacted with a robot in the past few days, whether you realized it or not.

Maybe it’s the Roomba that automatically vacuumed your floors or perhaps you talked to the digital assistant on your smartphone. Whatever that interaction, the robotic age is becoming more woven into the fabric of society. But instead of simply being tools (like automated factory machinery) modern robots are becoming more interactive ”“ and more social.

“I think this is the year we embrace social robots,” says Andrea Keay, managing director of Silicon Valley Robotics and founder of Robot Launchpad, speaking at a panel at South By Southwest Interactive conference. “We’re starting to see robots interact with people. Earlier robots didn’t interact as much as perform.”

Read it all.

Appallingly high infant mortality rates persist in eight South Carolina counties. Among the awful numbers that fully warrant the “Cradle of Shame” title of a Post and Courier series concluding in today’s paper:

On average, more than 200 newborns have died in those counties during each of the last three years.

Since 2000, 6,696 babies in South Carolina have died before their first birthday.

Eight of our state’s 46 counties lack an obstetrician.

Read it all.

More Americans are saying “I do” more than one time.

Nearly one in five U.S. adults””roughly 17%””has been married two or more times, according to a new analysis by the U.S. Census Bureau of its 2008-2012 American Community Survey. About 4% of U.S. residents age 15 or older have been married three or more times.

The findings””the first snapshot of remarriage trends by the census with levels of geographical detail””are the latest to suggest that, while marriage has declined in the U.S. since the 1960s, remarriage, especially among older Americans, is on the rise.

Read it all.

Last year, the radio host Diane Rehm watched in agony as her husband, John, starved to death over the course of 10 days.

Severely crippled by Parkinson’s disease, his only option for ending the suffering was to stop eating and drinking. Physicians in most states, including Maryland, where he lived, are barred from helping terminally ill patients who want to die in a dignified way.

“He was a brilliant man, just brilliant,” Ms. Rehm said in an interview. “For him to go out that way, not being able to do anything for himself, was an insufferable indignity.”

Posted in * Christian Life / Church Life, * Culture-Watch, * Economics, Politics, Aging / the Elderly, Anthropology, Death / Burial / Funerals, Ethics / Moral Theology, Health & Medicine, Law & Legal Issues, Life Ethics, Parish Ministry, Politics in General, Psychology, Religion & Culture, Theology

This past summer, our newborn son was rushed to a Neonatal Intensive Care Unit because of an unexpected problem with his lung. As we sat there seeing his rapid breathing, watching his oxygen levels rise and fall, and hearing alarms sound what seemed like every minute, our world was shaken. We were reminded of the fallen-ness of creation.

One of the only things that brought me comfort in those days was, oddly enough, the Creeds, with their reminder that God is the maker of heaven and earth. He was not unaware of what was going on with our son, or uncaring, or far removed; rather, He had created our son and was also working to re-create him in the process of healing. And in the meantime, we could run to Him and take refuge in Him as the only thing that remained steady and unchanged.

Read it all.

Human embryos have been genetically modified for the first time, leading to the prospect of designer babies, according to a leading scientific journal.

Scientists speaking anonymously to Nature have said that several laboratories have altered the DNA of human embryos, with the results of their work now awaiting publication. Although illegal in much of the world, such techniques would not break the law everywhere, being allowed in Russia and parts of South America.

Alterations to individual human genomes have the potential to revolutionise medical care, enabling genetic diseases to be prevented and significantly lessening the risk of others that are partially genetic, such as some forms of breast cancer.

Read it all (requires subscription)

For his sane and timely books, like 2010’s “Deadly Choices: How the Anti-Vaccine Movement Threatens Us All,” the pediatrician Paul A. Offit takes much abuse from anti-vaccine activists. He has been called a liar, a profiteer and ”” in the words of one activist group ”” a “millionaire vaccine industrialist.”

In “What Would Jesus Do About Measles?,” his New York Times Op-Ed last month, Dr. Offit addressed the false conflict that some perceive between medicine and religious faith, writing that if religion “teaches us anything, it’s to care about our children, to keep them safe.” His new book, “Bad Faith,” offers a history of episodes in which fringe groups abjured modern medicine, with deadly consequences. And he continues his argument that religion, properly understood, should welcome vaccines, as well as other medical interventions.

Unfortunately, Dr. Offit’s book is more a fervent attack job than an earnest attempt to understand people with different, if misguided views. His book is thinly sourced and poorly researched, seeming at times as if he began with a conclusion and then went in search of evidence.

Read it all.

Jean Vanier, a Canadian who launched an international network of communities for the mentally disabled, has won the 2015 Templeton Prize worth $1.7 million for affirming life’s spiritual dimension.

The U.S.-based John Templeton Foundation announced the award on Wednesday in London, calling him “this extraordinary man” whose message of compassion for society’s weakest members “has the potential to change the world for the better”.

Vanier, 86, founded the first L’Arche (“Ark”) community in 1964 when he invited two mentally disabled men to leave their large institution and live with him in a small house in Trosly-Breuil, a village 95 km (60 miles) north of Paris.

Read it all.

Isis is allegedly attacking Iraqi soldiers with roadside bombs containing chlorine gas as allied forces continue a huge assault against the group in Tikrit.

Footage captured by an Iraqi bomb disposal team shows plumes of thick orange gas emerging from a detonated roadside bomb.

The team told the BBC it has diffused “dozens” of chlorine bombs left by Isis militants, which it says are used more as a means to create fear than harm.

Read it all.

Just about everybody has one raging narcissist to deal with, sooner or later — on the job, in social situations or (God forbid) in the home. How did he get this way, we wonder? What was his childhood like?

For what appears to be the first time, researchers have taken a stab at that question by following and surveying 565 children ages 7 through 11 and their parents — 415 mothers and 290 fathers.

The results are quite clear: Parents who “overvalue” children during this developmental stage, telling them they are superior to others and entitled to special treatment, are more likely to produce narcissistic children — who can grow up to become narcissistic adults, unless something is done about it.

Read it all.

The suicide rate among today’s male military combat veterans is two and a half times that of any previous war and three times the rate of the male civilian population. That as many as 44 young veterans are killing themselves every day (more often than not by gunshot) is considered a crisis by those responsible for our veterans’ well-being.

Sixteen weeks of training, no matter how professional and intense, cannot prepare a young man for combat when he has been coddled all of his life by well-intentioned but ignorant parents ”” parents who honestly believe their children are in a constant state of jeopardy. Nothing could be further from the truth. Violent crime against children is down more than 20 percent since the 1950s.

Read it all.

Although he is largely incapacitated and can’t speak without the aid of a computerized voice, O.J. Brigance believes his life has value.

It was a message of hope the former Baltimore Ravens linebacker hammered home when he came out strongly against the proposed legalization of physician-assisted suicide in Maryland.

“Every day, every hour, every minute, every second of life, is God-given and valuable,” Brigance told members of the Senate Judicial Proceedings Committee during a March 10 hearing on the Death with Dignity Act. “To enact this legislation would devalue the lives and possible future contributions of Marylanders.”

Read it all.

Marijuana legalization got a boost on Capitol Hill on Tuesday as a trio of rising stars in the Senate launched an effort to rewrite federal drug laws.

The push to decriminalize at least the medical use of marijuana came from Republican Sen. Rand Paul of Kentucky and Democratic Sens. Cory Booker of New Jersey and Kirsten Gillibrand of New York.

Their move comes as another sign of how rapidly the politics of marijuana are shifting on Capitol Hill. Long an issue avoided by lawmakers with big political ambitions, marijuana legalization now presents opportunities to make inroads with new voters.

Read it all.

Modern technology provides us with many means to cause our downfall, and our natural moral psychology does not provide us with the means to prevent it. The moral enhancement of humankind is necessary for there to be a way out of this predicament.

If we are to avoid catastrophe by misguided employment of our power, we need to be morally motivated to a higher degree (as well as adequately informed about relevant facts). A stronger focus on moral education could go some way to achieving this, but as already remarked, this method has had only modest success during the last couple of millennia. Our growing knowledge of biology, especially genetics and neurobiology, could deliver additional moral enhancement, such as drugs or genetic modifications, or devices to augment moral education.

The development and application of such techniques is risky – it is after all humans in their current morally-inept state who must apply them – but we think that our present situation is so desperate that this course of action must be investigated. We have radically transformed our social and natural environments by technology, while our moral dispositions have remained virtually unchanged. We must now consider applying technology to our own nature, supporting our efforts to cope with the external environment that we have created.

Read it all.

The nation’s shortage of doctors will rise to between 46,000 and 90,000 by 2025 as the U.S. population grows, more Americans gain health insurance and new alternative primary care sites proliferate.

A new study announced by the Association of American Medical Colleges (AAMC), a lobby for medical schools and teaching hospitals, said “the doctor shortage is real” with total physician demand projected to grow by up to 17 percent as a population of baby boomers ages and the Affordable Care Act is implemented.

“It’s particularly serious for the kind of medical care that our aging population is going to need,” said Dr. Darrell Kirch, AAMC’s president in a statement accompanying the analysis by research firm IHS.

Read it all.

…there are more than 6.5 million people working part time who would like to have more hours.

Randa Jama pushes airline passengers on wheelchairs to their gates at the Minneapolis-St. Paul International Airport. This had been a full-time job when she took it last fall, but then a couple of months later, that changed.

“They told me that you’re working only Saturday and Sunday from now,” she says.

That cut her hours to 12 a week. Sometimes, her supervisors ask her at the last minute to stay late or do an extra shift. Since she cut back on babysitters, she can’t accommodate.

Read it all.

It’s a troubling trend and it’s not clear what’s driving it, the team at the Centers for Disease Control and Prevention reported.

“The data don’t allow us to determine why,” said the CDC’s Thomas Simon, a suicide expert who helped lead the study. “Is it social media? Is it conventional media? Is it access to other methods?”

What CDC is very worried about is giving troubled a teens a “how-to” guide for how to commit suicide, but the agency also wants parents, teachers, friends and others to be aware of the risks. When media report on certain suicide methods, often officials see a rise in suicides afterwards, using the method described.

Read it all.

Liberia has gone a week without reporting any new cases of Ebola, the first time such a milestone has been reached since May 2014, the World Health Organization says.

But officials say there have been 132 new cases in Guinea and Sierra Leone in the week to 1 March.

They have warned that populations are so mobile in the area that there could easily be fresh outbreaks in Liberia.

Read it all.

Based on oral arguments this morning, the latest Supreme Court showdown over Obamacare could lead to another narrow ruling determining the fate of the health-care program. Here are five important takeaways from the hearing in King v. Burwell, a challenge an IRS rule providing financial assistance to millions purchasing health insurance through federal-run exchanges offered in states that did not create their own online marketplaces….

(1) The vote will be close. The four justices from the court’s liberal wing appear on board with the Obama administration’s argument that all exchanges — whether state or federal — can offer subsidies. Justice Anthony Kennedy and Chief Justice John Roberts are still potential swing votes. Justices Antonin Scalia and Samuel Alito seem to sympathize with the plaintiffs’ argument that the text of the Affordable Care Act only authorizes subsidies in state-run exchanges….

Read it all.

With all the changes in healthcare over the past few years, many system and hospital leaders now acknowledge the importance of employee engagement. Employees are the one constant in the healthcare equation, and their ability to persevere during times of change can determine whether a healthcare system maintains its quality of care and patient service.

Yet, for some reason, the concept of physician engagement isn’t getting the attention it deserves. Perhaps healthcare leaders assume that physicians are self-motivated and their interest in their patients or research trumps the need to engage them.

But physician engagement is vital to a hospital’s or system’s success. I

Read it all.

The Supreme Court on Wednesday considers the most serious challenge to the Affordable Care Act since the justices upheld it as constitutional almost three years ago.

At issue is whether millions of Americans who receive tax subsidies to buy health insurance are doing so illegally. If the justices rule that the payments are not allowed, the entire health-care law could be in jeopardy.

The latest showdown between the Obama administration and the conservative legal strategists who have targeted the law since its passage in 2010 focuses on a once obscure phrase in the legislation: “established by the State.”

Read it all.